I have never blogged before. I wrote a few chapters of a book when my first husband was sick with ALS (Lou Gherig's disease). The working title was "There ARE Princesses in ALS Land: Musings from the Throne" (someone needs to illustrate a bedpan for me). The title comes from a well intended Social Worker at the clinic who told me there were no princesses in ALS land.... and I told her to meet the first one. Princess does not mean a Hilton heiress. Nor is it the pop celebrity of the hour. Princesses seem to have gotten the short end of the stick as of late. A TRUE princess brings to mind Princess Grace. Someone who unites, protects and serves those around her fiercely with dignity the best she can while learning and holding her head high no matter what happens.

There are about 5 working chapters and I started it when he was diagnosed and kept up for a few years. I am stuck on the chapter entitled "Ass Hair - Men have it, We don't". But I've only gotten as far as... If you are full time caregiver, wait until he is sleeping and wax him. Then I got sidetracked. I am not putting those out right now.

I'm going to just jot what I think about daily. I have dark humor and scare people when they first meet me (or some would say "first, shit, I'm still scared of you) and I'm sorry if I offend. Just thinking. 

And I begin with an apology to the man I call The Cutest Boy In the World - and here I have to nod to Jill Conner Browne, Leader of the Sweet Potato Queens and acknowledge that name came from her book. I use it with great respect. Scott puts up with a lot and I mean a lot. God Bless Him. He has my whole heart.

And I also to the best kids who are going to grow up warped for sure.

anyways. just thinking....